One Week Already

Well it's been one week home already, and we can hardly believe where the time has gone. A little synopsis: Raina began her time at home here completely messed up with the time change. She thought that bedtime was more like 4am instead of 9pm. This proved extremely challenging to our transition back to homelife since our exhaustion level hit an unprecedented high. Coupled with the time-out-of-whack, was the world's most raging ear infection in her left ear. Turns out, she has a ruptured eardrum, for which we have her on a double antibiotic to heal. Our pediatrician said it's one of the nastiest he's ever seen, which we thought was oh so special. We pray she does not experience any hearing loss from this. She has spent the week getting to know Evan and Colin (she has taken to them both very well). And we've discovered that Raina has one incredible appetite, for which we are thrilled. She is figuring things out in her own time - and considering all the changes she has been through in the previous 3 weeks, we feel she is adjusting extremely well. She has been a wonderful addition to our family, and we still pinch ourselves that she's really here. Friday was her initial pediatrician appointment for a full examination. A plan has been developed to begin her first testing - pelvic and sacral spinal MRI, kidney and bladder ultrasound, EKG and Echocardiogram, and a full urinalysis (which will all be performed next week at the University of Chicago). When the results of these initial tests are in, we will be traveling to Cincinnati Children's Hospital to consult with their Pediatric Colorectal team, as the focus of Raina's surgeries will be performed there. Our pediatrician, as well as Dr. Levitt's team in Cincinnati, have been encouraging to us. We are fully aware of the potential future that Raina faces - the best case and worst case scenarios. Although there are many unknowns regarding her condition, we are moving forward in the confidence that she can and will be helped. I realize that I have not delved into the full details of Raina's condition (which I will attempt to clarify when the official plan is in place). I feel it will be more appropriate to share when I can clearly lay out the steps ahead, without resorting to speculation. Until then, we are simply a happy family of 5 learning to live with each other. Yes, we're tired. Yes, we've been frustrated. But no, we wouldn't change it for the world. Because when you love each other as much as we do... that's just the way it is.